Taking CHARGE 

My name is Jessica. I was a new mom to a handsome boy who was diagnosed with CHARGE syndrome.  Knowing that CHARGE syndrome was a very rare syndrome with no cure, it wasn't the only thing Gray had to endure. He also had Hydrocephaly with IVH that caused him numerous complications. Grayson passed just after his 3 month birthday on the 11th of February.  

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My husband and I were married just short of a year ago (April 22nd, 2017). In the last year we have endured so much more than most do in a lifetime. While my Mom days may have been limited, I feel the need to do good with the passion and strength that Gray gave me. 

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It's my hope that with this blog and your help we can spread awareness to these rare syndromes that cause so many so much pain.